Rare Disease Day 2023: Rare Disease Day is celebrated on the last day of the month, which is February 28 this year. The purpose of Rare Disease Day is to raise awareness of rare diseases among the general public and motivate decision makers and researchers to consider the needs of people affected by rare diseases.
Tomorrow is #Rare DiseaseDay 2023!
💡 Light up at 7pm anytime, anywhere to raise awareness for people living with rare diseases!
🏛️ Find a monument being lit near you: https://t.co/LRb1IGhZBZ
🏠 Learn how to light up your home: https://t.co/S0PNzbafDo#LightUpForRare pic.twitter.com/ZXywyedgLJ
– Rare Disease Day (@rarediseaseday)
February 27, 2023
What is a rare disease?
A rare disease is one that affects a small percentage of the population. In some parts of the world, an orphan disease is a rare disease for which there is no market large enough to receive funding and support in finding treatments unless the government offers favorable conditions. financing to develop and market those treatments.
Rare Disease Day 2023: Theme
This year 2023, the theme of Rare Disease Day 2023 is “Share your colors”. It is a call to patients, governments, world leaders and other interested parties in positions of power to end the stigma associated with people with rare diseases and work together to raise awareness of the difficulties these patients face.
Rare Disease Day 2023: History
This day was established in 2008 by the European Rare Diseases Organization to raise public awareness of diseases that go undiagnosed or untreated. That organization claims that while there are many days for people with specific diseases (such as AIDS, cancer, etc.), there have never before been any days for people with rare diseases. Additionally, the organization believes that social media support for people with rare diseases and their families is not enough. The National Organization for Rare Disorders organized 200 rare disease patient advocacy groups in the United States in 2009, and organizations in China, Australia, Taiwan, and Latin America also took the lead. efforts to coordinate events and publicize this day in their respective countries.
On the other hand, the European Rare Diseases Organization (EURORDIS) organized the first Rare Diseases Day, which took place on February 29, 2008, in several European countries as well as in Canada through the Canadian Rare Disorders Organization . The date was chosen because February 29 is a “rare day” and 2008 marked the 25th anniversary of the United States’ passage of the Orphan Drug Act.
List of Bank Holidays in March 2023
Rare Disease Day 2023: Meaning
The main goal of Rare Disease Day is to raise political and public awareness of rare diseases and how they affect the lives of patients. Additional foci for observation include:
- Rare Disease Day helps raise public awareness of rare diseases and motivates researchers and policymakers to respond to the needs of people affected by rare diseases.
- Since most rare diseases are incurable and many go undiagnosed, raising awareness about them will encourage people to consider the possibility of finding treatments.
- The quality of life for many people around the world has improved thanks to significant global advances in rare disease policy over the years. And that credit goes to the continued struggles and practices observed on Rare Disease Day.
Thousands of events, from races and walks to art exhibitions and workshops, have taken place every year since Rare Disease Day was established. Rare Disease Day participants organize events, meetings, and campaigns in addition to participating in walks and press conferences, organizing fundraisers, and writing mass letters to elected officials. These gatherings are organized to draw attention to decision makers and promote social change.
Important dates in February 2023
Categories: Optical Illusion
Source: pagasa.edu.vn