Clove Syndrome Awareness Day 2023: August 3 of each year is designated as Clove Syndrome Awareness Day globally. This day aims to spread awareness about the rare genetic disorder. Its emphasis is on taking action to gather community support.
So far there has been no announcement regarding the theme of Clove Syndrome Awareness Day 2023.
What is clove syndrome?
Clove syndrome stands for congenital lipoma, vascular malformation, epidermal Nevi, and scoliosis/skeletal/syndactyly syndrome. This is a rare genetic disorder that causes hypertrophy of the fatty tissues, vascular malformations, and other skin and bone abnormalities. It affects many systems in the body and can pose significant health challenges for those affected.
A gene called the PIK3CA mutation is the main cause of Clove disease. During a baby’s development in the womb, these mutations occur on their own. There are currently no recognized risk factors that increase or decrease the likelihood of these mutations.
Clove Syndrome Awareness Day 2023: History
Clove syndrome causes deformities due to overgrowth of tissues. This rare genetic condition affects an individual’s physical and mental health. So, in 2010, the CLOVES Syndrome Community (CSC) established Clove Syndrome Awareness Day. This day is celebrated on August 3 worldwide. It aims to initiate campaigns, raise awareness and awareness to limit challenges and stand in solidarity with those suffering from Clove Syndrome.
Clove Syndrome Awareness Day 2023: Goals
Two main goals of Clove Syndrome Awareness Day:
- To increase knowledge and understanding about Clove Syndrome, a rare genetic condition characterized by tissue overgrowth and the difficulties associated with it.
- And to advance research projects that aim to expand diagnosis, treatment options, and ultimately improve quality of life for people with this disorder, while promoting support for those with the disorder. influence and their families.
Clove Syndrome Awareness Day 2023: Meaning
Clove Syndrome Awareness Day is of great significance in spreading awareness about this rare disease in various ways:
- Educational seminars are held to shed light on this rare disease.
- Online campaigns to raise public awareness of early diagnosis and treatment.
- Promote community meetings to reduce stigma and show empathy for patients with Cloves syndrome.
- Virtual support groups create a sense of unity.
- Media coverage to encourage fundraising efforts.
- Also, this day advocates for better research and medical advancement.
Clove Syndrome Awareness Day 2023: Fun Facts
- There are only 200 confirmed cases of Cloves syndrome worldwide.
- Blue marks solidarity with Clove syndrome.
- Clove Syndrome Awareness Day was established in 2010.
- 50% of patients with rare genetic disorders are children.
- It may take another 5 years to find the right diagnosis.
In a nutshell, Clove Syndrome Awareness Day is celebrated on August 3 every year. It aims to promote understanding, expand support and solidarity to advance research and empower affected individuals and their families.
Important dates in August 2023
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Source: pagasa.edu.vn